Why this site

On May 24, 2003 my baby Avshalom Chaim was born prematurely at 33 weeks gestation with Trisomy 18 (Edwards syndrome), breathed an hour on this world, and then died peacefully. During the time of my pregnancy all was normal until my 21 week routine ultrasound showed multiple serious fetal abnormalities. Through the internet I was able to find emotional support and medical information that helped me during the rest of my pregnancy and in my grief.

Many parents who lose their T 18 child desire a memorial presence on the web. I gained so much from so many people, that I wanted to be able to give something back to the community of T18 parents. My contribution is to offer help in making websites for families of T18 children.

If you would like help making a website, please visit the contact page by clicking here.

Another purpose of this site is to be a place to list any and all family sites of T18 children. That way it is easy for us to find each other and see each other's children, hear each others' stories, to gather information and gain support. Often when a family first gets a diagnosis, there is a lot of fear of what the baby will look like. As you will see, the spectrum is great, and to a parent their child is always beautiful. However, many, many of Edwards syndrome babies are quite lovely, even to those outside the family. Seeing this can alleviate many fears for the newly diagnosed family. To view family sites, please see the families page by clicking here. To list your site, please use the contact form on the contact page. We will be honored to add your site to our list.


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